Tuesday, August 13, 2019

Time goes by

Josephine just had her 4th birthday. We had a rainbow and unicorn party. It was cute.We played games and had decorations.
She went through a year of preschool. They have done wonderfully with her. She is due to start year 2 of preschool in a few weeks.
She has made some advances communicating with switches. When I can set it up, she has a switch by her head for no and one by her hand for yes. Sometimes she does really well with them. Others she just plays with them. My hope is that she will get more reliable and consistent with her switches.
We bought a van and worked with her waiver to get it modified. It took 7 months and a lot of back and forth, but it has made transportation so much easier.
We have reached a point where we are either going to have to sell our home or modify it. Because of the layout, modifications will not be easy to overcome the issue of stairs, but I am still hoping that will be possible. I love our home.
We have become very involved in a group online. It is for kids with extra needs and their caregivers. The kids receive a cape and every month are given missions. Upon completing the missions with help from siblings or a parent, the kids receive patches to put on their capes. We eagerly await a new mission at the beginning of every month, and then we enjoy completing it.

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